Just a small update again as things move along.
David is now being managed by the Palliative Care team, he has both a Doctor and nurses who visit a few times a week as well as being on call 24/7 which is such a great support. Poor David has been having a lot of increasing burning pain in his torso/back area lately, as well as nausea. He had been unable to sleep very well because of this, and hardly eat, which of course makes everything harder on him, he has been very weak, vomiting etc.
When I was there one day last week and he was pretty bad, Catherine/Mum called the Palliative Care nurse who came over quickly and ended up putting a butterfly port (? I think it's a port?!) into his arm, which means that pain and nausea meds can be given via syringe (the nurse taught us both to do this). The nurse said that the other meds probably weren't being absorbed very well, especially due to all the issues in his insides, plus these new meds are more slow release so keep him a little more constant. Since then, he is feeling a bit better/less burning pain which we are very thankful for. Able to sleep better too.
They are talking about bringing in a hospital bed to the house to make things easier for David and for Mum who is the amazing nurse as well as devoted wife! We will see if/when that happens. If his pain/nausea gets really bad again, a few days in hospice to get things under control is also an option.
He is mostly sleepy, very tired and weak. But in his good moments he can still have a little chat and a smile and even a joke, and those are very precious times indeed.
Update again soon. Thanks as always for the encouraging cards and letters, the nourishing meals that help inspire David to eat when he doesn't often feel like it, the visits and texts and most of all, the love and prayers poured out on David and Catherine which is definitely lifting them up and strengthening them through this tough time. They are deeply touched and grateful for YOU ALL, and the rest of the family is on their behalf too!!!! Much love xx Kate
He is mostly sleepy, very tired and weak. But in his good moments he can still have a little chat and a smile and even a joke, and those are very precious times indeed.
Update again soon. Thanks as always for the encouraging cards and letters, the nourishing meals that help inspire David to eat when he doesn't often feel like it, the visits and texts and most of all, the love and prayers poured out on David and Catherine which is definitely lifting them up and strengthening them through this tough time. They are deeply touched and grateful for YOU ALL, and the rest of the family is on their behalf too!!!! Much love xx Kate
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Thank you for your words of encouragement, prayer and support! They are all appreciated!